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Cooking

Cooking for people with Parkinson’s disease can present challenges in the kitchen, affecting a person’s ability to chop, stir, and maneuver around the stove.

The presentation was led by Christine Ferguson PhD, RD, CSG, Assistant Professor, Dietitian Education Program, Assistant Director at the University of Alabama at Birmingham. Dr. Ferguson will focus on solutions to make cooking easier for people with PD.

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Living in Oregon means living through four distinct seasons every year. Seasonal changes in temperature, sunlight, and activity can affect people with Parkinson’s in unique ways. Read on for tips to manage these changes and make the most of the summer months.

Be SUN responsible

Beat the HEAT and HUMIDITY

Find the best time and place to EXERCISE

Plan ahead and stay flexible for VACATIONS and other TRAVEL

Sources
1 https://davisphinneyfoundation.org/sunlight-and-parkinsons/
2 https://www.parkinson.org/blog/science-news/air-pollution#:~:text=Once%20in%20the%20brain%2C%20air,both%20classic%20signs%20of%20PD
3 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9847288/

In partnership with our Silver Partner

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Delaram Safarpour M.D., Associate Professor of Neurology at OHSU. Dr. Safarpour discusses dietary management and the role of the gut microbiome for people living with Parkinson’s disease.

Dr. Safarpour is the medical director of the Deep Brain Stimulation Program at OHSU. Her research focus is the effect of Deep brain stimulation in the treatment of movement disorders as well as gastrointestinal dysfunction in Parkinson’s disease. She oversees several clinical trials and has authored and co-authored several peer-reviewed articles and book chapters on gastrointestinal dysfunction in Parkinson’s disease as well as deep brain stimulation in the treatment of movement disorders.

WomenAndPD

Throughout the month of August, we’ll be sharing experiences and advice from women living with Parkinson’s. Join the conversation and add your voice to the discussion!

Coming Up:

August 7, 2024: Profile of the “Parkinson’s Diva” Maria De Leon
Maria De Leon was a practicing movement disorder specialist when she was diagnosed with Parkinson’s disease. We talk with her about her experience as a specialist and a patient.

August 14, 2024: Experiences of Women with Parkinson’s Disease Webcast
Amy Lavallee will moderate a panel discussion with Maria and Sree Sripathy about the unique experiences of women with Parkinson’s.

August 21, 2024: Tips from Women with Parkinson’s
We’ll be collecting and publishing tips from women with Parkinson’s to share strategies for living with the disease.

Join the Conversation:
Submit your tips, comments, and questions to info@briangrant.org.
Join our Facebook group discuss at facebook.com/briangrantfoundation.
Read our articles and register for our August Wellness Webcast on Wednesday, August 14, 2024.

In partnership with our Platinum Partner

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Brain and Environment

Next week I’m traveling to Washington, D.C. to take part in the Brain and Environment Symposium. I’m part of a panel on water talking about my time at Camp LeJeune as a kid. You’ve probably heard about Camp LeJeune from the PD community or commercials on TV talking about the water on the base that was contaminated with TCE. I’d seen the commercials, too, but it wasn’t until Dr. Ray Dorsey read my autobiography and reached out to me that I learned that my time at Camp LeJeune may have contributed to my Parkinson’s diagnosis.

At first, I had a hard time understanding how something that had happened decades ago when I was just a kid could’ve led to my diagnosis. But as I started learning more from Ray, it was actually a relief to start finding some answers. Since I was diagnosed 16 years ago, I’ve struggled to understand how I got this disease, especially at such a young age, and often times blaming myself. And though I understand that my exposure to TCE at Camp LeJeune is likely only one of the contributing factors to my diagnosis, it’s been helpful to me to have any answers to how I got Parkinson’s and to have some reassurance that maybe this won’t happen to my kids.

When Ray asked if I would participate in the symposium, I was nervous and wanted to say no. The truth is I don’t know a lot about science and a symposium about the brain and the environment with researchers and policymakers is out of my comfort zone. But Ray reassured me that my role is to tell my story so that people understand why it’s important to stop using chemicals like TCE. He said that change only happens when people like me stand up and tell our stories. If I can play any role in helping future generations avoid getting diseases like Parkinson’s, I will. I hope you’ll join me.

To learn more about the Brain and Environment Symposium happening on Monday, May 20, 2024, visit brainandenvironment.org.

The Brian Grant Foundation is a proud partner of advocacy efforts that are working to ban or reduce environmental toxins linked to Parkinson’s disease. Here are some actions you can take today to join us in these efforts:

  1. Read “Ending Parkinson’s Disease” and sign the pact at endingpd.org/resources.
  2. Join PD Avengers, a global, patient-led advocacy organization working to end Parkinson’s at pdavengers.com.
  3. Take action on policies that affect the Parkinson’s community by visiting the Unified Parkinson’s Advocacy Council (led by The Michael J. Fox Foundation) at michaeljfox.org/contact-your-policymakers.

Brought to you by AbbVie, Amneal, CND Life Sciences, Providence Brain and Spine Institute, and StrivePD.

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Cognitive decline is a symptom of Parkinson’s disease that’s gaining more attention for its impact on quality of life. For Mental Health Awareness Month, Dr. Joel Mack talks about cognitive issues in Parkinson’s and ways to improve them.

Joel Mack MD is a Psychiatrist with the NW Parkinson’s Disease Research, Education and Clinical Centers at the Portland VA Medical Center.

Our friend and Program Advisory Council member, Todd Vogt, was highlighted on KGW8. He earned a spot on the 2024 US Paralympic row team Mixed Double Sculls division. The 2024 Paralympic Games will be held in Paris on Sep 8, 2024. Watch party anyone?! Congratulations, Todd!

$455,000 was raised during the 2024 Shake It ‘Til We Make It gala to support our efforts to empower people impacted by Parkinson’s disease to lead active and fulfilling lives. Many thanks to our sponsors, guests, and many other supporters far and wide!

Megan and family

Megan Taye shares her story of the positive impact that the Brian Grant Foundation community has had on her life

Make a gift today and join our community of support for those impacted by Parkinson’s. If you donate $25 or more before tomorrow you’ll get an invitation to join Katrina Kahl, Brian Grant, and Megan Taye in a virtual conversation on Monday, May 13 from 12-1pm PT. We hope to see you there!

Thank you for being a part of our community.