Shaping the Advocacy Agenda for Oregonians Living with Parkinson’s

February 2025

Hosted by the Brian Grant Foundation (BGF), more than 30 people living with Parkinson’s, their care partners, and passionate advocates gathered at the Parkinson’s Advocates Happy Hour to discuss shaping the advocacy agenda for Oregonians impacted by Parkinson’s disease. This event served as an opportunity to align efforts on policies that will drive meaningful change at the state level.

Katrina Kahl, the executive director for BGF, introduced several issues that impact people with PD with the goal of identifying two top priorities for the group to rally around. Initiatives included increasing state funding for Parkinson’s research, improving prescription drug affordability, and expanding access to behavioral health services. Participants also discussed the importance of raising awareness about environmental toxins linked to Parkinson’s, securing local proclamations for Parkinson’s Awareness Month, and advocating for better social conditions, such as transportation and access to nutritious food.

BGF works at both the state and national levels to advance policies that benefit people with Parkinson’s. Through its partnership with the Unified Parkinson’s Advocacy Council and other national partners, BGF supports initiatives that increase federal research funding, expand telehealth services, and push for stronger environmental protections. However, this event underscored the need for a more localized approach, ensuring Oregon’s unique needs are addressed through targeted state-level initiatives.

Attendees were asked to complete a survey to identify the top two priorities for Parkinson’s advocacy in Oregon. Once determined, they are encouraged to take an active role in advocacy by signing petitions, contacting legislators, and sharing personal stories to humanize the impact of Parkinson’s disease. Whether through written testimony, public awareness efforts, or direct policy engagement, the Parkinson’s community in Oregon is mobilizing for action.

This event was a reminder that advocacy starts with those most affected. By raising their voices and working together, Oregonians living with Parkinson’s can influence policies that improve access to care, advance research, and enhance quality of life for all impacted by the disease.

Are you ready to join the movement? Stay informed and get involved in BGF’s Parkinson’s advocacy efforts today! Send an email to [email protected] to share your story, your thoughts, and find out how you can join the group!