January 2025
Senator Chris Gorsek, who introduced SB 718, appeared with BGF Executive Director Katrina Kahl, with advocates Kevin Mansfield, Sarah Winter, Patti Togioka, Sarah Lambert, and Brian Grant’s son, Jaydon Grant, all testified in support of a measure to establish a Parkinson’s registry in Oregon.
A Parkinson’s registry in Oregon would help us:
- Identify high-risk groups, support patient contact studies and serve as a valuable data resource to bolster continued research of Parkinson’s disease.
- Determine an accurate rate of incidence and prevalence of Parkinson’s by state.
- Help researchers study patterns of Parkinson’s disease over time.
- Improve our understanding of potential links, such as pesticide usage and military service, and the development of Parkinson’s disease.
View video testimony from BGF Executive Director, Katrina Kahl (2 min) and Brian Grant’s son, Jaydon Grant (2 min).
View entire the testimony supporting SB 718, ruling on establishing a Parkinson’s Registry in Oregon (Length-28 min): LINK
SB 718 Measure Overview: LINK
The Michael J. Fox foundation has also developed a web page that has additional information, including states where registries have already been created: https://michaeljfox.quorum.us/statewideregistries/
