Advisory Council on Parkinson’s Research, Care, and Services (ACPRCS) (NPP)
The National Institute of Neurological Disorders and Stroke is accepting public comments ahead of the next Advisory Council meeting for the National Parkinson’s Project:
https://www.federalregister.gov/documents/2026/05/20/2026-10117/national-institute-of-neurological-disorders-and-stroke-notice-of-meeting
How to submit:
- Email: NationalPDplan@nih.gov
- Include “public comment” in the subject line and body
- Deadline June 22, 2026
This is an important opportunity for the Council to hear directly from the Parkinson’s community—including people living with Parkinson’s, patient groups, caregiver organizations, and clinicians—about the need for a comprehensive national strategy.
We encourage you to use this opportunity to:
- Highlight gaps in research, care, and services
- Underscore the urgency of a coordinated federal response
- Share priorities and articulate desired outcomes and recommendations for a national Parkinson’s plan
We want to take full advantage of this open opportunity to set the tone and ensure community voices are always sought and incorporated. Community input will help shape the Council’s focus, recommendations, and broader federal efforts.
OMB Proposed Rule on Federal Financial Assistance
OMB has proposed a sweeping rewrite of the rules governing federal grants and cooperative agreements across all agencies:
https://www.federalregister.gov/documents/2026/05/29/2026-10817/regulation-for-federal-financial-assistance
As drafted, the rule would significantly reshape the research funding landscape by:
- Giving political appointees final authority over funding decisions, reducing peer review to an advisory role
- Requiring awards to align with Administration policy priorities, introducing potential political and ideological considerations into funding decisions
- Allowing agencies to terminate grants at any time for broadly defined reasons, creating instability for ongoing research
- Codifying recent funding-related actions into binding regulation, making them far more difficult to reverse
- Imposing new restrictions on research activities and collaborations, which could limit innovation and scientific progress
Taken together, these changes raise serious concerns about the independence, stability, and predictability of federally funded research.
What we’re suggesting:
- Immediate action: Submit a brief request for an extension of the 45-day public comment period, given the rule’s scope and complexity
- Next step: Consider submitting comments outlining concerns about impacts to scientific integrity and research continuity due on July 13, 2026.
How to submit a public comment:
When possible, reference specific sections (e.g., “2 CFR 200.xxx”) to strengthen your comment [regulations.gov]
Go to: https://www.regulations.gov/document/OMB-2026-0034-0001
Click “Comment” and upload or paste your submission
Deadline: July 13, 2026 [federalregister.gov], [regulations.gov]
